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Newfoundland and Labrador Cancer Care Registry launched by Eastern Health

ST. JOHN’S, NL – A new database has been launched that will improve care for cancer patients in the province.

The Newfoundland and Labrador Cancer Care Registry (NLCCR) combines five programs already in operation or under development within the Provincial Cancer Care Program operated by Eastern Health.

They are the colon, breast and cervical screening programs and the provincial tumour and systemic therapy surveillance programs.

“The NLCCR is an important tool in the provision of cancer care and prevention, and a primary example of how Eastern Health is carrying out its vision of Healthy People, Healthy Communities,” Eastern Health president and CEO David Diamond said in a news release Monday.

“As part of our ongoing efforts to improve the health of our population across Newfoundland and Labrador, our goal over the next three years is to continue providing access to information, education and tools that would lead to preventing disease before it starts and detecting it earlier for the benefit of our patients.”

The registry aims to provide information to support decision making and identify priorities in health care; collect information to better understand cancer risks and the effects of cancer; measure change over time; positively impact cancer care delivery, research and policy; and improve delivery of screening programs.

Existing cancer program registries as part of the Provincial Cancer Care Program have been collecting information from cancer patients in the province each time they came in contact with the health-care system.

The data contained within the NLCCR will allow for better health-care planning and more quality improvements to the cancer system.

“A comprehensive cancer care database will provide data on the effectiveness of screening programs and give health-care professionals, patients and their families a more complete picture of the risks, causes and outcomes of cancer in the province,” said Elaine Warren, vice president responsible for the cancer care program.

The NLCCR received authorized registry status on May 5, 2017 from the provincial government under the Personal Health Information Act (PHIA).

Special designation under PHIA enables the cancer care program to collect, use and disclose data related to cancer screening with implied consent, which is intended to ensure that data maintained within the registry are complete and accurate to support the delivery of quality health-care services in Newfoundland and Labrador.

More information about the NLCCR is available at Eastern Health’s website.

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